Tuesday, January 10, 2012

2 out of 3 neurologists agree...

so much as happened since I last wrote...I'm sorry. Two mobile babies are a lot of mobile babies.  I'll do my best to summarize.

Our Christmas was great. I put out a call for donations for gift bags for families in the NICU, and within days our dining room was full of items. A friend and my sister helped put them together, and we dropped them off. I talked to a mom with a 29 weeker who was 1.5 pounds, they'd been there 2 months and were looking at at least another 2, she had to break from our conversation to take a call from her landlord as she was facing eviction. Talking with her gave me pause to (once again) count my millions of blessings.

Firstly, most importantly, our second (third) opinion neurologist, one who specializes in disorders of the corpus collosum, was fantastic. He was kind, patient, and made sure to answer all of my questions. He also deemed my boy "clinically normal child at this time; normal development for corrected age.  No signs of hydrocephalus/increased ICP. May well turn out to be normal."  He went on to say that while he's macrocephalic, the fluid we saw at 6 chronological months may well be gone by now, and though his corpus collosum is "mildly thin" he thinks the MRI is old enough that it might look normal by now, and that my boy seems normal enough that it doesn't seem worth it to put him through another MRI.  What wonderful, amazing, fantastic, stupendous news!!
He can also crawl, pull to stand, get down carefully, and play catch. He still goes to physical therapy twice a week....he's getting much closer to within "wide range of normal." What an amazing kid.

My girl baby can stand up by herself, but as soon as she realizes she's doing it she grabs on or gets down. She babbles with such inflection, I'm positive she's trying to tell me something. I keep saying "she'll be walking within the week," but she's not quite there. She "reads" us books, following the lines with her finger and telling the story. She can push her brother around on their push toy.

I start a new job two weeks from yesterday. I am very, very thankful for this. It will be double the commute, and only a little more money, but it's with an organization I really believe in and there's a ton of room for mobility, something I didn't see/didn't want in my current position.

I hope to write something more creative, funny, introspective, etcetera sometime soon...stay tuned.

1 comment:

  1. yay! so happy to hear/read all of this. three cheers for the monkeys! what's the new job?